Follow-up visit

hallo there!
Yesterday we had our first follow-up visit at the orthopaedic surgeon after 1,5 years.
Our daughter is doing well. Her two toes are growing at the same speed as all her other toes. So good news so far.
We are seeing the doctor in 2 years from now, when she is 6 1/2. According to him there is no need for more frequent follow up visits.
The outlook is more or less the same as the one outlined at the previous visit. Provided that she continues to have no problems with shoes and walking we are going to postpone surgery indefinitely.
The doctor told us that maybe when she is in her 10s, she will probably want to do surgery due to aesthetic issues….. We’ll see then.
That’s all for us.
Any news from you, guys?

Let me remind you that we have a forum on this blog where you can talk to each other to confront.


2 Comments (+add yours?)

  1. Noelle
    Dec 05, 2012 @ 14:02:22

    Thanks for the update, I was excited to get an email that there was some activity on this blog!
    Mara had her half of her foot amputated in September. This was absolutely necessary in our eyes as her Macrodactyly was so progressed no kind of shoe would ever fit on her foot. The operation was very smooth and her recovery was fantastic. I’m happy to report that she is taking 2-3 steps at a time by herself as of this week. She is 15 months!
    Her foot may bulk back up as they can’t be sure they removed all of the abnormal tissue, so as of right now it is just a waiting game.


  2. macrodactyly
    Dec 05, 2012 @ 14:11:44

    Hallo Noelle. Sorry for my long absence on the blog! I am happy to hear that your little one is doing fine. You are absolutely right: it’s just a waiting game. And we must be good players for our children’s sake.


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