New pdf update

In the OUR STORIES section you will find the newly uploaded pdf.

At first I had thought not to mention the nick names; however, I then realized that this implied a greater difficulty in filling in updates to the stories should they become available. For this reason, if anybody wants me to remove the nick name or the entire row relating to his/her story, do not hesitate to write me. However, you should also remove your comment(s), since they are all still here.

As you will see I have tried to put together people living in the same area, so that maybe you can find someone near you and share your experience privately.

It would be great to have updates on people who wrote in 2011 or even more recently. How are you/your kids doing?

ciao

Fede

3 Comments (+add yours?)

  1. CLAUDIO QUARTU
    Feb 20, 2014 @ 11:28:39

    Ciao, non sono molto bravo con l’Inglese, come scritto sul forum (sezione italiana) mi chiamo Claudio e sono il papŗ di Giorgia, una bimba di 5 mesi affetta da Macrodattilia al dito medio della mano sx. Siamo in attesa di essere chiamati dal dottor Pajardi della clinica San Giuseppe di Milano per un’operazione al nervo che serve il dito che si spera possa rallentarne la crescita. Se puÚ farti piacere ti lascio i miei contatti:

    claudioquartu@yahoo.it 3935205938

    grazie di tutto

    Claudio

    Reply

  2. macrodactyly
    Feb 20, 2014 @ 17:43:38

    Ciao Claudio, ti ho risposto via mail.

    Reply

  3. Dino
    Mar 11, 2014 @ 06:30:31

    Ciao, anche io con l’inglese non me la cavo molto bene. Anche il mio bambino di quasi due anni ha una macrosindattilia al piedino.
    Ho compilato il form, quindi immagino tu abbia i miei contatti.
    Un caro saluto e grazie.
    Dino

    Reply

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