Classification of macrodactyly

According to Orphanet, macrodactyly is classified as follows:

http://www.orpha.net/consor/cgi-bin/Disease_Classif.php?lng=EN&data_id=156&PatId=20971&search=Disease_Classif_Simple&new=1

Unfortunately no summary exists on the disease on Orphanet.

Moreover, I have run a search on the Eurordis database, and no online community exists on this disease. RAREST AMONG THE RARE!

http://www.eurordis.org/content/rare-disease-online-communities

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