Updated pdf

Dear all,

as promised I have updated the pdf with our Stories:

OUR STORIES. (Last update December, 1st, 2014)

As you’ll see, there are many missing data and many people have been lost to follow up.

For this reason I have decided to write an email to all the people who commented here to know if they have any updates they wish to share.

I will also add an option to stop receiving emails.

Thanks for your support!


3 Comments (+add yours?)

  1. Karyn
    Dec 02, 2014 @ 09:02:38

    As at January 2013 I had decided to see doctor, however I still could not bring myself to go, the thought of having to show someone my finger was to much, ( I know how pathetic that sounds) anyway things got to much the pain, the stiffness etc so finally in October 14 I saw my GP who has referred me to the hospital, shoud have appointment In the next few weeks. x


  2. macrodactyly
    Dec 02, 2014 @ 09:08:44

    dear Karyn,
    I am really happy to hear from you. I wish you all the best for your appointment. Please, keep up posted.


    • Karyn
      Jan 18, 2015 @ 23:49:54

      Been to the hospital, was very emotional to say the least but the consultant was brilliant, xrays showed it was the bone so debulking not going to be an option. It has been arranged for a specialist to come see me next month. I will keep you posted.


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